It was a hell of a week last week so I’m glad we are starting a new week. Piper came home on Friday afternoon and is doing very well. We have to keep her PICC line flushed twice a day and she continues to take Flagyl four times a day for her c.diff., but thankfully, […]
Our little Piper has been checked back into the hospital for a few more nights as the diarrhea continues to ravage her hydration efforts and her poor little backside. They got a new IV put in today (after a lot of effort and frustration) and they’ve decided to insert a PICC line tomorrow so that […]
After a much needed six nights in Jamaica, Erin and I returned home to gastric madness! We are so thankful to both of our mothers for staying with the kids while we went on vacation, especially since it wasn’t quite as easy and painless as we’d hoped for them. Early in the vacation, we got […]
The Lee Family had a very good Easter weekend and Piper is doing very, very well. She still gets a little crazy from the prednisone, but that’s a minor complaint after all we’ve been through over the course of the past year. Things are returning to normal in the Lee household and after Piper got […]
Today’s surgery was a total success and we are so thrilled to let you know that Piper no longer has a hemodialysis port dangling from her chest any longer. It’s been a long, long year and this really felt like the turning of another page in all of our lives. Piper has been acting like […]
Just a brief note to let you all know that Piper’s hemodialysis port comes out on Monday at 10 am. This is a big step because once it is out, a major source of infection is gone. This also means that she will be visiting the hospital on a less frequent basis and can return […]
We are almost at the three month mark and things are going very well. Piper continues to put on weight and her behavior is…well, hilarious. The prednisone definitely brings out “our little devil” and it’s not always pretty. She loves doing exactly what she’s not supposed to do, but she’s back to being in charge […]
Erin and I have been thinking more and more about our charitable organization and we are beginning to put together some mission statements and objectives. The first objective that we are committed to, is providing a network of support for donee children and adolescents to help them stay on their medications. It has come to […]
Here we are, almost two months later and things are very good. Piper continues to do very well with her new kidney and the doctors are please with her progress. We are constantly changing the dosing and other aspects of her daily medication, which we have to be very vigilant about, but she’s doing wonderfully. […]
If I just keep saying that, then I won’t be so disheartened every time Piper has to go back to the hospital for an overnight. Everything is fine, but she spent Sunday night at the hospital and should be released today. She hasn’t been eating very well and has continued to have diarrhea. After her […]