It was another hectic weekend with all of the kids, but a good one in that Piper did not have to have a dialysis treatment on Saturday or Sunday.  Piper remains a tired, clingy and sick little girl though.  She needs almost constant attention, oftentimes needing to be held.  It’s very rare if one of […]

Well, today was a first.  I got the “Piper” experience over at A.I. duPont Children’s Hospital.  I went in this morning for blood work at 8:15 am and got poked in the right arm.  They took three vials of blood for a lipid panel, phosphorus and some other tests I can’t really remember right now. […]

There really isn’t much to update you all on but I didn’t want to go too many days without a post.  Piper has had dialysis three times this week and her blood pressure seems to be getting a little bit better under control.  The medication cocktail is doing its job, although she really doesn’t like […]

I appreciate Erin’s compliment, but I don’t have anything more eloquent to add to what she wrote yesterday.  I’m mostly just frustrated that the surgery has been delayed after we had put so much energy into getting mentally prepared for the operation.  I completely understand why they are delaying the surgery and I think it […]

Piper’s surgery date to have her kidneys removed has been postponed until the beginning of October. Unfortunately, Piper’s hemoglobin is low (between 8 and 9) which creates a couple of problems: 1. With her hemoglobin this low the chance of her needing a blood transfusion during the surgery is high. This is something we are […]

I apologize for my lack of updates, but I spent all day Friday enjoying a round of golf with some great guys and for a good cause.  Friday evening was also great because Piper came home after dialysis earlier in the day and all my people were home, which was sooo nice.  I have to […]

I was hoping that Piper would be coming home from the hospital today, but it looks like she will be there until at least Saturday.  They are concerned about her blood pressure readings and are just scared to let her leave the hospital.  One problem is that they are having a very difficult time getting […]

Piper is back in the hospital again and I’m writing this from another uncomfortable fold out bed in her room at 11:20 pm. She had her dialysis today and the dialysis nephrologist did not feel comfortable with the very high blood pressures he was getting so he wanted her admitted. The blood pressure readings were […]

I spent the better part of my day at the children’s hospital yesterday and my suitability as a donor continues to look better and better.  The first thing they did was take a bunch of blood for a variety of tests to look at organ function and things like that.  Then I had a chest […]

I took over for Erin at dialysis today (because she actually still has a job!) and although Piper had a very difficult time with her treatment, we got some really good news.  The tissue typing came back from Jefferson and I am an excellent match and am a completely compatible donor.  After watching Piper cry […]