I took over for Erin at dialysis today (because she actually still has a job!) and although Piper had a very difficult time with her treatment, we got some really good news. The tissue typing came back from Jefferson and I am an excellent match and am a completely compatible donor. After watching Piper cry and yell through the last 45 minutes of dialysis, I was already an emotional wreck, but when I learned of the results of the tissue typing, I lost it. I broke down and wept on the shoulder of our transplant coordinator, Cathy McAdams. I feel comfortable that I’m not the first person to do that!
It’s amazing. Just when you feel like you’re holding it together, the smallest thing can trigger an extreme wave of emotion. I think that’s another sign of God. Does evolution explain our need for emotional release? Can science explain what is behind the feeling of real emotional pain? The pain of watching someone you love go through such a traumatic experience and the effect it has on you? I don’t think so. If there were no God, and this life was all about natural selection, then what would that mean for a child like Piper who was born with a genetic mutation which would, without treatment, end her life? What does natural selection really say about us? Nothing good, that’s for sure. That’s where God comes in. There’s a reason we don’t simply discard faulty humans and it can only be explained by the existence of a God. In no way can science explain why a single parent spends hours upon hours a week tending to her severely handicapped child while also trying to balance a job which pays her little more than minimum wage. Yet, when you walk around a children’s hospital for a few weeks, you see it everywhere.
Perspective is a wonderful thing, but can rarely be achieved without some pain. I used to think the most important thing in the world was a bank account full of money and financial security. I can’t describe how much money I would give to have three healthy, happy children.
Sorry for the rant. I just type what’s on my mind. You never know what you might get. 🙂
Love, Chris and Erin
3 thoughts on “QUICK UPDATE…AND SOME RANDOM THOUGHTS”
God is good and is giving you the strength you and Erin need to navigate this path. What wonderful news that you are an excellent donor candidate. I love reading your comments and being a part of a truly loving family. Your mom sent us the video of Piper & Harper’s dance party…made my day but your ‘Rant’ came in second:-)
Love and hugs, Aunt Carol
So glad you are a match for Piper!! Thanks for the updates, happy that Piper is able to be at home for awhile:/) My baby Rowan and I pray for Piper every night!!!
Chris, I am so very happy that you are a match. That is great news! You are truly sharing your soul with your updates and it is so beautiful to read. I am tearful reading each one and so thankful to be part of your journey. Know your Mom & Dad and Nan are so proud of you and your family.
Love & prayers!!
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