THINGS ARE GOOD!

Here we are, almost two months later and things are very good.  Piper continues to do very well with her new kidney and the doctors are please with her progress.  We are constantly changing the dosing and other aspects of her daily medication, which we have to be very vigilant about, but she’s doing wonderfully.  Our biggest challenge is making sure she is eating enough fatty foods to gain weight.  Wouldn’t it be wonderful if we all had that problem!

Here are Harper and Piper yesterday:

I am doing very well, and although not yet ready for exercise, I feel pretty darn good.  I still have some incision site tenderness and sensitivity which freaks me out at times, but I’ve been lucky not to have had any other problems.  My insides continue to make peace with their new arrangement and that has led to some strange gas bubbles and intestinal pains that I’ve never felt before, but it’s all becoming the new normal.  I do have to admit that I’ve been ignoring the doctors’ orders not to pick up the kids.  It’s just too hard not to grab them and give them hugs and kisses!

Our family life continues to return to normal as well.  Piper is still home and will be until April, when she can return to school.  She goes to the hospital two to three times a week for blood work and weigh-ins.  They are starting to be a little more liberal with her care, which is really nice.  Autumn Fedale (April’s identical twin) is taking care of Piper full time now that Erin is back to work.  The other two girls continue to thrive at the Educational Enrichment Center.  Harper is definitely coming a long way with her talking and I can understand more and more of what she’s saying each day.

Sophia and Harper seem really happy that things are back to normal.  As time marches on, I am hopeful that things will normalize even more.  It will be great to get the port out of Piper’s chest so she can take baths again (hasn’t had a proper bath since August!) and it will be great to get her back in school.

Keep the prayers coming that we don’t run in to any complications or other problems with Piper’s new kidney.  It’s always in the back of our minds that something could go wrong even though we are always optimistic that this thing will last her for years.  We were beyond relieved that her last hospital stay and diarrhea was totally attributed to her reaction to Cellcept and not something more serious.  She’s on a new medicine now and things seem great!

Thanks again to you all! Love – Chris and Erin

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